OUR STORY

Founded in love 2021, by Michelle Williams and the support of her husband Michael Williams, to bring more awareness of severe youth eczema, which  effects their son, "Super Boy" MJ. He has suffered from the chronic skin disease since the age of two. The foundation also exists to provide some financial relief of medical expenses to parents of severe pediatric eczema sufferers.

In 2019, pre pandemic, Michelle and her husband made the decision to bring MJ home to homeschool. His eczema was such a disruption in his life that most nights he slept for only 3-4 hours. He would then be very tired throughout the day at school, and would constantly itch. We are thankful for those that allowed some flexibility to help while he was attending school.  However, it just became too much. 

After a year being home and many failed attempts of steroid treatments, restrictive dieting, allergen elimination, trips to urgent care, a 7 day hospital stay for MJ, and countless conversations with pharmacy companies, I started the journey of researching our costs and documenting more of MJ's experience. I quickly discovered we were spending a substantial amount of money to care for his eczema. The costs of dermatology care, allergists, co-pays, urgent care visits, medicines for infections, the OTC moisturizing creams, bandaids; added up to more than several thousand dollars within the year.  I also noticed he was suffering from isolation since there were less and less days he interacted with friends. He also had low self esteem from seeing the scars all over his body from scratching, and no matter how many creative ways I found to dress him (sports sleeves on arms, tights under shorts, neck scarves; to name a few) to cover the scars, he still felt ugly. This now meant costs for mental care. I was amazed to find we were among a very large community of families with children affected that have limited resources and felt the same defeat as MJ. I felt led to do more than just tracking expenses and his experience. I know there are families that want to do more, but may not be able to financially and since eczema is not categorized as a debilitating disease, which it sometimes can be, assistance programs are not as readily available, or non-existent all together.

Child sufferers don't really have a voice, except through their parents. Often times the peers of your child, along with adults, don't fully understand the severity and the emotional impact eczema can have on a child. Most children affected also have a difficult time communicating what eczema is and how it really feels. That is why we believe our experience and ongoing fight is so needed. We would like to help bring more awareness about severe pediatric eczema to our community, cities, and states. We want to narrow the gap of available resources for medical supply assistance, counseling assistance, and assistance with costs associated with medical help for youth eczema. We will provide grants for financial support, and provide resources for families of youth sufferers close by, and if the need takes us out of state, we will be there too!

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